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Editorial

Vol. 3 No. 2 (2024): May 2024

Palliative care: "It is OK to be not OK"

DOI
https://doi.org/10.55048/jpns112
Submitted
October 23, 2023
Published
2024-05-10

Abstract

Palliative care is in demand as more people are diagnosed with life-threatening illnesses. Palliative care provides primary, end-of-life, and bereavement care, considering the diversity of patients’ cultural backgrounds. Various strategies have been developed and investigated to improve care access for the targeted populations. Additionally, palliative care is intended to help patients live well till death. While death is inevitable, it is nonetheless essential to life. However, some people still struggle to discuss their life-threatening conditions and accept receiving the appropriate palliative care. Notwithstanding the multitude of palliative care guidelines, the public’s limited understanding or misconceptions concerning palliative care pose a significant obstacle for healthcare workers in delivering effective palliative care services. Therefore, it is critical to continue advocating for palliative care services, as each and every person deserves to experience a quality of life until their final moments. While being diagnosed with a life-threatening illness may be an unpleasant experience, it is acceptable to discuss it to allow others, including healthcare workers, the chance to offer appropriate support.

References

  1. Anderson, R. J., Bloch, S., Armstrong, M., Stone, P. C., & Low, J. T. (2019). Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence. Palliative Med, 33(8), 926-941. https://doi.org/10.1177/0269216319852007 DOI: https://doi.org/10.1177/0269216319852007
  2. Djelantik, A., Smid, G. E., Mroz, A., Kleber, R. J., & Boelen, P. A. (2020). The prevalence of prolonged grief disorder in bereaved individuals following unnatural losses: Systematic review and meta regression analysis. Journal of affective disorders, 265, 146-156. https://doi.org/10.1016/j.jad.2020.01.034 DOI: https://doi.org/10.1016/j.jad.2020.01.034
  3. Etkind, S. N., Bone, A. E., Gomes, B., Lovell, N., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2017). How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC medicine, 15(1), 1-10. https://doi.org/10.1186/s12916-017-0860-2 DOI: https://doi.org/10.1186/s12916-017-0860-2
  4. Givler, A., Bhatt, H., & Maani-Fogelman, P. A. J. S. (2020). The importance of cultural competence in pain and palliative care. StatPearls Publishing. https://europepmc.org/books/n/statpearls/article-41271/?extid=30521222&src=med#__NBK493154_ai__
  5. Hawley, P. (2017). Barriers to Access to Palliative Care. Palliative Care: Research and Treatment, 10. https://doi.org/10.1177/1178224216688887 DOI: https://doi.org/10.1177/1178224216688887
  6. Hayden, S. (1993). Chronically ill and “feeling fine”;: A study of communication and chronic illness. Journal of Applied Communication Research, 21(3), 263-278. https://doi.org/10.1080/00909889309365371 DOI: https://doi.org/10.1080/00909889309365371
  7. Hollen, J. L. (2023). The meaning behind the song: “It’s OK” by Imagine Dragons. Old Time Music. https://oldtimemusic.com/the-meaning-behind-the-song-its-ok-by-imagine-dragons/
  8. Holman, H. R. (2020). The Relation of the chronic disease epidemic to the health care crisis. ACR Open Rheumatol, 2(3), 167-173. https://doi.org/10.1002/acr2.11114 DOI: https://doi.org/10.1002/acr2.11114
  9. Kustanti, C. Y., Chu, H., Kang, X. L., Huang, T.-W., Jen, H.-J., Liu, D., Shen Hsiao, S.-T., & Chou, K.-R. (2022). Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis. Palliative Medicine, 36(2), 305-318. https://doi.org/10.1177/02692163211066747 DOI: https://doi.org/10.1177/02692163211066747
  10. Kustanti, C. Y., Chu, H., Kang, X. L., Pien, L. C., Chen, R., Tsai, H. T., & Chou, K. R. (2022). Anticipatory grief prevalence among caregivers of persons with a life-threatening illness: A meta-analysis. BMJ Supportive & Palliative Care. https://doi.org/10.1136/bmjspcare-2021-003338 DOI: https://doi.org/10.1136/bmjspcare-2021-003338
  11. Kustanti, C. Y., Fang, H. F., Linda Kang, X., Chiou, J. F., Wu, S. C., Yunitri, N., Chu, H., & Chou, K. R. (2021). The effectiveness of bereavement support for adult family caregivers in palliative care: A meta?analysis of randomized controlled trials. Journal of Nursing Scholarship, 53(2), 208-217. https://doi.org/10.1111/jnu.12630 DOI: https://doi.org/10.1111/jnu.12630
  12. Kustanti, C. Y., Ikaningtyas, N., Yunitri, N., Arifin, H., Sinaga, M. R. E., Asi, E. K., Melati, N., & Susanti, H. D. (2023). Scoping review of grief studies in Indonesia. Jurnal Keperawatan Padjadjaran, 11(3), 223-235. https://doi.org/10.24198/jkp.v11i3.2318 DOI: https://doi.org/10.24198/jkp.v11i3.2318
  13. Kustanti, C. Y., Jen, H. J., Chu, H., Liu, D., Chen, R., Lin, H. C., Chang, C. Y., Pien, L. C., Chiang, K. J., & Chou, K. R. (2023). Prevalence of grief symptoms and disorders in the time of COVID-19 pandemic: A meta-analysis. International Journal of Mental Health Nursing, 32(3), 904-916. https://doi.org/10.1111/inm.13136 DOI: https://doi.org/10.1111/inm.13136
  14. Lundorff, M., Holmgren, H., Zachariae, R., Farver-Vestergaard, I., O’Connor, M., & O’Connor, M. (2017). Prevalence of prolonged grief disorder in adult bereavement: A systematic review and meta-analysis. Journal of Affective Disorders, 138-149. https://doi.org/10.1016/j.jad.2017.01.030 DOI: https://doi.org/10.1016/j.jad.2017.01.030
  15. McMaughan, D. J., Oloruntoba, O., & Smith, M. L. (2020). socioeconomic status and access to healthcare: Interrelated drivers for healthy aging. Frontiers in public health, 8, 231. https://doi.org/10.3389/fpubh.2020.00231 DOI: https://doi.org/10.3389/fpubh.2020.00231
  16. Richmond, C. (2005). Dame cicely saunders. BMJ: British Medical Journal, 331(7510), 238. DOI: https://doi.org/10.1136/bmj.331.7510.238
  17. Rome, R. B., Luminais, H. H., Bourgeois, D. A., & Blais, C. M. (2011). The role of palliative care at the end of life. Ochsner Journal, 11(4), 348-352.
  18. Vanable, P. A., Carey, M. P., Blair, D. C., & Littlewood, R. A. (2006). Impact of HIV-related stigma on health behaviors and psychological adjustment among HIV-positive men and women. AIDS and Behavior, 10(5), 473-482. https://doi.org/10.1007/s10461-006-9099-1 DOI: https://doi.org/10.1007/s10461-006-9099-1
  19. WHO. (2020). Palliative care. Retrieved July 20, 2023 from https://www.who.int/news-room/fact-sheets/detail/palliative-care

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